Blink of an Eye: Introducing Ghoti

Thursday, July 28, 2011

Introducing Ghoti

Yesterday evening, Noah received the most amazingly, wonderful gift...some very close friends surprised Bubs with his very own fish!

Oh. my. goodness.

Bubs was in hog heaven! Or should that be fishy heaven?!?

Because of my crazy teacher obsession with the English language, we have decided to name the fish Ghoti. If you know anything about the ~~dingy~~ English language, then when you read Ghoti you pronounced it /fish/. Of course...because...

gh, pronounced /f/ as in tough /tʌf/
o, pronounced /ɪ/ as in women /ˈwɪmɪn/
ti, pronounced /ʃ/ as in nation /ˈne͡ɪʃən/

The name works quite well in our house because our cat is named Kitty {short for Catherine}.

Mr. Man just loves to watch Ghoti swim all around his tank.

Thank you so much for bringing such joy to my Little Man!

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The Story

Our son, Noah Stone Jackson, was born with a very rare genetic disorder called Fraser syndrome. Among his many challenges are one “hidden eye”, a narrow trachea (which required him to have a tracheotomy), an imperforate anus (which required a colostomy), difficulty swallowing (which required a G-Tube for feedings), the fusing of his vocal chords (which means he may never speak), and club feet (which are being corrected with braces). Our family is on an amazing journey together. We are learning to walk along this path that God has planned for us, trusting in His infinite love and wisdom. We are taking each day (or each moment) as it comes and relying on each other, our friends and family, and our God for strength. We have a long road ahead of us filled with several more surgeries, lots of recovery, countless hours of therapy, and many trips to specialists around the state. Every day brings us challenges but they pale in comparison to the smiles and cuddles from our little man. Noah is our son, a true gift from God, and we cannot wait to see where this adventure leads.